There’s a part of this journey I don’t think many people talk about. Not the fear, not the uncertainty, not even the clinical science — but the isolation that comes with…
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Blog SMA AwarenessWhen Awareness Meets Reality: Reflections on SMA, Privilege, and the Power of Early Diagnosis
At KmotivationSA, I use my lived experience to spark meaningful conversations, challenge systems, and champion change. I write this reflection not only as someone living with spinal muscular atrophy (SMA), but…
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Blog SMA Awareness UpdatesWhen Accessibility Depends on Your Postcode: Why Disability Parking in South Africa Needs to Change
In the 25 years I’ve lived with a disability, I have never received a parking ticket for using a disabled parking bay. Until this holiday. On a recent trip, I was…
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In a world that is constantly evolving, we talk a lot about inclusion, accessibility, and diversity but the real heart of these concepts often lies in something far more intimate: psychological…
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I was watching Survivor the other night — a show that’s usually all about strength, strategy, and survival — when something completely different caught my attention. One of the players opened…
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Living with Spinal Muscular Atrophy (SMA) is an ongoing lesson in surrender — a constant balancing act between strength and fragility, control and acceptance. As my body continues to change, I…
