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🌸 Happy Spring! 🌼 After a meaningful month of rai

🌸 Happy Spring! 🌼

After a meaningful month of raising awareness for spinal muscular atrophy and with quite a lot happening in my personal life, I’ve decided to take a little break from social media.

Nothing scary, I promise! I’m simply taking some time to rest, recharge and enjoy the new season. 🌷☀️

I’ll be back soon! Until then, I’m sending everyone lots of love, sunshine and good thoughts. Remember: it’s okay to slow down, take a breath and put yourself first. 💛

Happy Spring, beautiful people! 🌻

Can you imagine living in a body that never lets y

Can you imagine living in a body that never lets you forget you have a condition, while living in a world that keeps asking you to prove it?

To prove that you are struggling.
To prove that you need help.
To prove that your exhaustion is real.
To prove that accessibility is necessary.
To prove that treatment, support and inclusion are not special privileges.

My body reminds me of SMA every day—in the movements that have become harder, the independence I have lost and the energy required for ordinary tasks.

But sometimes, the heaviest part is not SMA itself. It is living in a world that still expects people with disabilities to explain, justify and repeatedly prove their needs before they are taken seriously.

I should not have to prove that my life is valuable.
I should not have to prove that my voice matters.
And I should not have to prove that I deserve the opportunity to live a full life.

Believe people when they share their lived experience. Listen before asking them to prove their pain.

#SMAAwarenessMonth #LivingWithSMA #BelieveDisabledPeople #DisabilityAdvocacy #InvisibleStruggles #InclusionMatters #KMotivationSA

If you could feel SMA for one day, what would surp

If you could feel SMA for one day, what would surprise you most?

Would it be the effort it takes to lift a cup, hold a fork or reach for something on the table?

Would it be needing help with things you once did independently?

Would it be the careful planning behind every outing—or the exhaustion that comes from asking your body to do what others barely have to think about?

SMA affects more than muscles. It can shape how I eat, drink, dress, move, work and participate in everyday life. Yet one day would still only offer a glimpse, because I don’t get to hand SMA back when the day is over.

I share my reality not to create pity, but to build understanding. When we understand one another better, we create a world with more empathy, accessibility and inclusion. 💜

What would you want to understand about living with SMA?

#SMAAwarenessMonth #LivingWithSMA #SMAType2 #DisabilityAwareness #LivedExperience #SeeThePerson #KMotivationSA

Ready to take on a challenge? ♿️ Today, I want yo

Ready to take on a challenge? ♿️

Today, I want you to look at the spaces around you through a different lens.

As you move through your workplace, a shop, restaurant or public space, ask yourself:

Could someone using a wheelchair enter without assistance?
Are the pathways wide and free from obstacles?
Is there a genuinely accessible bathroom?
Could everyone reach the counters, tables and facilities?
Would a person with a disability feel included—or like an afterthought?

Accessibility is about far more than adding a ramp. It is about creating spaces where everyone can participate safely, independently and with dignity.

Take a look around today. What is one accessibility barrier you notice—and what could be done to change it?

#SMAAwarenessMonth #AccessibilityChallenge #AccessibilityMatters #DisabilityInclusion #SMAAwareness #WheelchairAccessibility #KMotivationSA

There are some letters we write that were never re

There are some letters we write that were never really meant to be sent.

This one is to my body.

I am exhausted.
I am grateful.
I am vulnerable.
And somehow… I am still here.

My body has carried me through pain, uncertainty, limitations, celebrations, heartbreak, adventures and more battles than I ever imagined I would face.

Some days, I am frustrated with what my body can’t do.
Some days, I am angry at the things it asks of me.
And some days, I simply wish I could give it a break.

But even on the hardest days, I’m learning to be grateful for this body — not because it has always been easy to live in, but because it has carried me this far.

So this is a reminder to myself:

I don't have to be strong every second.
I don't have to pretend I'm okay when I'm not.
I can rest. I can feel. I can be vulnerable.

And I can still be proud that I’m here.

Still fighting.
Still living.
Still finding reasons to smile.
Still choosing to keep going.

Dear body, I know you’re tired.

Thank you for not giving up on me.
I promise I won’t give up on you. 🤍

#SMAAwarenessMonth #SpinalMuscularAtrophy #SMAWarrior #NeverGiveUp #StillHere #DisabilityAdvocate #KMotivationSA #ChampioningChange

SMA Awareness Month 💜 | Know the Facts August is

SMA Awareness Month 💜 | Know the Facts

August is Spinal Muscular Atrophy (SMA) Awareness Month — a time to raise awareness, challenge misconceptions and help people understand what life with SMA can really look like.

Here are a few facts you may not know:

💜SMA is a genetic neuromuscular condition that affects the motor neurons responsible for controlling voluntary muscle movement.

💜SMA can affect people differently. There are different types and a wide spectrum of severity, from infancy through adulthood.

💜 SMA is often described as a rare disease, but it is one of the more common genetic causes of infant mortality.

💜 People with SMA can live full, meaningful lives. With advances in treatment, supportive care, accessibility and early intervention, the possibilities continue to grow.

💜SMA is not a person's identity. It is part of someone's story — not the limit of what they can achieve.

💜Awareness matters. The more we understand SMA, the more we can advocate for early diagnosis, access to treatment, inclusive environments and equal opportunities.

This SMA Awareness Month, don't just learn the facts — **listen to the people living them.** 💜

Because awareness creates understanding.
Understanding creates inclusion.
And inclusion can change lives.

Share this post and help us spread the word. 💜

#SMAAwarenessMonth #SMAAwareness #SpinalMuscularAtrophy #SMAWarrior #RareDiseaseAwareness #DisabilityAwareness #InclusionMatters #AccessibilityMatters #KMotivationSA #ChampioningChange

Tomorrow is Never Give Up Day. 💜💚 And I want to t

Tomorrow is Never Give Up Day. 💜💚

And I want to turn every step into a reminder of what it means to keep going.

I live with Spinal Muscular Atrophy (SMA). My journey has included physical challenges, medical obstacles, a wheelchair, and moments when giving up would have felt easier. But SMA has also taught me resilience, courage, adaptability and, above all, the power of never giving up.

So tomorrow, 18 August, I’m asking you to take your steps and dedicate them to something bigger.

👣 Walk for SMA.
👣 Walk for those who can’t.
👣 Walk for those fighting battles nobody sees.
👣 Walk for everyone who has ever been told their dreams are too big.
👣 Walk for those who simply refuse to give up.

You can join me from anywhere in the world — your city, your community, your neighbourhood, or even from home.

This is my Ride Beyond Limits.
This is my story.
And if it speaks to yours, join me.

The walk/ride is completely FREE. Sign up here:
https://walk.nevergiveupday.com/walk/82

Tomorrow, let's make every step count. Because sometimes, the biggest victory is simply taking the next step. 💜

#NeverGiveUpDay #SMAAwareness #SpinalMuscularAtrophy #WalkForSMA #RideBeyondLimits #NeverGiveUp #DisabilityAdvocacy #Inclusion #Accessibility #KMotivationSA #ChampioningChange

My body has changed. And if I’m truthful, acceptin

My body has changed. And if I’m truthful, accepting those changes hasn’t always been easy.

Living with SMA means constantly adapting to a body that doesn’t always do what it used to. Things that were once simple can become difficult. Independence can look different. And sometimes you have to grieve abilities you never imagined losing.

But while my body has changed, so have I.

I’ve become more adaptable. More determined. More willing to speak up for what I need and fight for the life I deserve. I’m learning that strength isn’t pretending the changes don’t hurt — it’s finding a way forward even when they do.

This SMA Awareness Month, I want to show all of it. Not only the positivity and the victories, but the reality of living with a progressive condition too.

Because my body may be changing, but I am still growing. Still fighting. Still me. 💜

#SMAAwarenessMonth #SMAAwareness #SpinalMuscularAtrophy #LivingWithSMA #DisabilityAwareness #KMotivationSA #MyBodyMyStory

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© 2020 Kerry Walsh Trust