Over the years, I’ve been asked many questions about living with Spinal Muscular Atrophy. People often want to know how I stay positive, where my resilience comes from, and what keeps…
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Knowing Isn’t the Same as Living It I’ve always known my disease was progressive. When you grow up with Spinal Muscular Atrophy (SMA), words like deteriorating and progressive become part of…
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“For most of my life, growing older was never something I feared. It was something I wasn’t sure I would get the chance to do.” In a world that often celebrates…
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Be honest with yourself…Is your life going completely to plan? If you’re in your late 20s or standing on the edge of 30, chances are the answer is no. And not…
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Lately I’ve caught myself saying something that makes me pause. I’ll laugh and say, “I’m not that old,” or “I’m still young.” It’s something many of us say without really thinking…
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It Was “Just Flu” In April 2024, I thought I had flu. If you live with Spinal Muscular Atrophy, you know that sentence is never casual. But I’ve had bronchitis before.…
