At KmotivationSA, I use my lived experience to spark meaningful conversations, challenge systems, and champion change. I write this reflection not only as someone living with spinal muscular atrophy (SMA), but…
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SMA Awareness
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Blog SMA Awareness UpdatesWhen Accessibility Depends on Your Postcode: Why Disability Parking in South Africa Needs to Change
In the 25 years I’ve lived with a disability, I have never received a parking ticket for using a disabled parking bay. Until this holiday. On a recent trip, I was…
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Asking for help is something most of us struggle with, whether we live with a disability, face mental health challenges, or are simply used to carrying the world on our shoulders.…
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Spinal Muscular Atrophy (SMA) is a rare genetic condition that weakens muscles over time. While there is no outright cure, there are treatments available that can slow progression and improve quality…
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This question has been weighing on me lately. Living with Spinal Muscular Atrophy (SMA) has shaped every part of my life — the good, the bad, the lessons, and the losses.…
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How do you explain to someone what it’s like to live with a rare disease or a disability — especially when you’ve spent your whole life trying, yet still struggle to…
