I have often defined myself by my disability and my rare disease. When you have a disability that is so obvious, it’s not exactly something you can hide. It has taken…
Browsing Category
SMA Awareness
-
-
In life, we are often presented with choices: to fight or to flee. While some may find solace in escape, I have found myself repeatedly standing at the crossroads, staring down…
-
Do your disease and disability have an effect on your mental health? This really got me thinking about what determines our thoughts. How does our mindset dictate the outcome and our…
-
For the month of August 2022 we ran a video campaign to create awareness around SMA! Week 1 Do you know what SMA is? Join me this month as I share…
-
Rare Diseases Day 2021 This year for World Rare Disease Day on 28th February 2022, Rare Diseases South Africa is redefining what it means to be “RARE”. RDSA is calling on South…
-
The schooling experience can be the defining years of a young individual’s life. Being able to participate within a mainstream schooling environment was extremely important for me and my family. It…
