“For most of my life, growing older was never something I feared. It was something I wasn’t sure I would get the chance to do.” In a world that often celebrates…
Browsing Category
SMA Awareness
-
-
It Was “Just Flu” In April 2024, I thought I had flu. If you live with Spinal Muscular Atrophy, you know that sentence is never casual. But I’ve had bronchitis before.…
-
There’s a part of this journey I don’t think many people talk about. Not the fear, not the uncertainty, not even the clinical science — but the isolation that comes with…
-
Blog SMA AwarenessWhen Awareness Meets Reality: Reflections on SMA, Privilege, and the Power of Early Diagnosis
At KmotivationSA, I use my lived experience to spark meaningful conversations, challenge systems, and champion change. I write this reflection not only as someone living with spinal muscular atrophy (SMA), but…
-
Blog SMA Awareness UpdatesWhen Accessibility Depends on Your Postcode: Why Disability Parking in South Africa Needs to Change
In the 25 years I’ve lived with a disability, I have never received a parking ticket for using a disabled parking bay. Until this holiday. On a recent trip, I was…
-
Asking for help is something most of us struggle with, whether we live with a disability, face mental health challenges, or are simply used to carrying the world on our shoulders.…
