“For most of my life, growing older was never something I feared. It was something I wasn’t sure I would get the chance to do.” In a world that often celebrates…
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Be honest with yourself…Is your life going completely to plan? If you’re in your late 20s or standing on the edge of 30, chances are the answer is no. And not…
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Lately I’ve caught myself saying something that makes me pause. I’ll laugh and say, “I’m not that old,” or “I’m still young.” It’s something many of us say without really thinking…
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It Was “Just Flu” In April 2024, I thought I had flu. If you live with Spinal Muscular Atrophy, you know that sentence is never casual. But I’ve had bronchitis before.…
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When the Year Begins with Loss The first two months of this year have felt heavy. More loss.More hardship.More difficult news than I expected so early on. I won’t name names.…
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There’s a part of this journey I don’t think many people talk about. Not the fear, not the uncertainty, not even the clinical science — but the isolation that comes with…
