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  • Blog

    22 in Pediatrics

    With COVID-19 everything is a bit different including hospital experiences. For most 22-year-olds it is normal to go to the hospital by yourself but when you require assistance for nearly everything…

  • Blog SMA Awareness

    SMA Awareness month

    It’s the second greatest month of the year (my birthday month is in October) August is #smaawarnessmonth and we want to get everyone talking about SMA, accessibility and create awareness around…

  • Blog

    My superheroes

    My family are true superheroes! When I was diagnosed my parents and older siblings were the first ones to decide that we were not going to take this lying down, we…

  • Blog

    Wheels in a world of stairs

    There are so many moments in my life where I’ve just been extremely frustrated at how I refuse to let my disease restrict me but then my environment does. The only…

  • Blog Past Events

    Past speaking engagements

    It’s funny to think about how I didn’t always love speaking in front of an audience but nowadays its where I seem to feel most comfortable. It all started when the…

  • Blog

    Graduation at home

    The 9th May 2019 would have been my graduation 🎓 however Covid-19 had other plans. This left me feeling both a little sad that we don’t get to celebrate this achievement…