In the 25 years I’ve lived with a disability, I have never received a parking ticket for using a disabled parking bay. Until this holiday. On a recent trip, I was…
Blog SMA Awareness Updates
Browsing Category
Updates
-
-
Living with a suprapubic catheter has completely changed my life. From dealing with spasms and infections to learning how to adapt at home, it’s been a journey of pain, growth, and…
-
Living with spinal muscular atrophy (SMA) is something I’ve written about many times before. It’s a rare, degenerative neuromuscular disorder that weakens the muscles over time. It’s not a condition that…
-
The Loneliness of a Life-Changing Decision Have you ever been surrounded by a million people but still felt so alone? It’s a question I’ve been pondering a lot lately. On September…
-
As I sit down to reflect on 2024, I can’t help but smile at the thought that every year feels like a roller coaster. It seems I write that every December!…
-
I have often defined myself by my disability and my rare disease. When you have a disability that is so obvious, it’s not exactly something you can hide. It has taken…
