Living with Spinal Muscular Atrophy (SMA) is an ongoing lesson in surrender — a constant balancing act between strength and fragility, control and acceptance. As my body continues to change, I…
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Asking for help is something most of us struggle with, whether we live with a disability, face mental health challenges, or are simply used to carrying the world on our shoulders.…
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Living with a suprapubic catheter has completely changed my life. From dealing with spasms and infections to learning how to adapt at home, it’s been a journey of pain, growth, and…
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Spinal Muscular Atrophy (SMA) is a rare genetic condition that weakens muscles over time. While there is no outright cure, there are treatments available that can slow progression and improve quality…
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This question has been weighing on me lately. Living with Spinal Muscular Atrophy (SMA) has shaped every part of my life — the good, the bad, the lessons, and the losses.…
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Expectation shadows us from birth—by our twenties we’re expected to graduate, by our thirties to marry, by our mid-thirties to embrace parenthood, by our forties to be financially stable. These “shoulds”…
