Happy can be defined as “feeling or showing pleasure or contentment.” Happiness isn’t what you think I recently went to a workshop by Mark Sham entitled Happiness. Happiness isn’t what you think.…
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What is PechaKucha 20×20? The PechaKucha 20×20 presentation format is a slide show of 20 images, each auto-advancing after 20 seconds. It’s non-stop and you’ve got 400 seconds to tell your…
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Do your disease and disability have an effect on your mental health? This really got me thinking about what determines our thoughts. How does our mindset dictate the outcome and our…
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What is Rare Diseases Day? Rare Disease Day is a globally coordinated movement for people living with rare diseases to achieve equity in social opportunity, healthcare, and access to diagnosis and…
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Being disabled and having to depend on someone to do a lot of tasks for you can often be difficult. It makes growing up difficult because you are never truly alone.…
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I have a rare condition called Spinal Muscular Atrophy. I was diagnosed at the age of 1 due to not progressing as my twin sister was. SMA is a genetic disorder,…