Do your disease and disability have an effect on your mental health? This really got me thinking about what determines our thoughts. How does our mindset dictate the outcome and our…
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What is Rare Diseases Day? Rare Disease Day is a globally coordinated movement for people living with rare diseases to achieve equity in social opportunity, healthcare, and access to diagnosis and…
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Being disabled and having to depend on someone to do a lot of tasks for you can often be difficult. It makes growing up difficult because you are never truly alone.…
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I have a rare condition called Spinal Muscular Atrophy. I was diagnosed at the age of 1 due to not progressing as my twin sister was. SMA is a genetic disorder,…
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Understanding the following statements and why they do not make you a burden is so important for your mindset. This especially helped me understand that I wasn’t a burden! A burden…
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For the month of August 2022 we ran a video campaign to create awareness around SMA! Week 1 Do you know what SMA is? Join me this month as I share…
